Clinical Studies Volunteers

The Cystinosis Research Foundation is dedicated to funding research that will lead to improved treatments and a cure for cystinosis. The following studies are being funded by the CRF to advance knowledge in key areas of cystinosis treatment.  Click the following links to see the full information for each study.

Research Study of Bone Marrow Transplant for Cystinosis Patients from Matched Related Donor - The clinical research study is being conducted at the Ronald Reagan UCLA Medical Center.

The Pediatric Neurology Research Group at the University of California, San Diego (UCSD) is conducting an onlinle research cystinosis adult outcome study.   Funding for this research grant was provided by the Cystinosis Research Foundation.